Just a few thoughts put together quickly as we finish out the day:
Dad often doesn’t know what day of the week it is or the
holiday we’re celebrating. I’m thankful he remembers the days of the week and
the holidays at all.
Dad comments sometimes that he doesn’t even know if his
siblings are alive. I’m thankful he remembers he has siblings and knows who
they are when we talk about them.
We don’t know how much longer Dad will remember he has
siblings or know them when he sees them. I’m thankful all four came for his
birthday at the beginning of November to make memories.
Dad’s reality is that any neighborhood we drive past is the
one in which he lived while in high school or where family lived. I’m thankful when
Don, Paul, Lucy and Tim were here and spent three days of “remember when …” I’m
thankful Dad knew who they were talking about and could participate in the conversation,
even initiating some stories and confirming other details. (More about that in
another blog.)
Dad has trouble telling jokes, even ones he has known for
years. I’m thankful he still understands many of them and laughs, particularly
at numbers 53, 76 and 117. (There’s a joke where someone just says a number and
the other person laughs because they’ve told the jokes so long they don’t have
to tell the joke, just the number of it. When I’m telling him jokes, I can just
say, “And then there’s 47,” and he’ll start laughing.)
Dad struggles with so many meals—chili dripping from a hot
dog at James Coney Island, trying to cut his fried chicken instead of eating it
with his fingers, getting dangling foods (melted cheese on enchiladas or
spaghetti strands) on his fork. I’m thankful he’s always up for going out for a
meal and still loves Jimmy’s and fried chicken since those aren’t Mom’s favorites,
and I have someone to go with.
Dad has to look for the door handle in the car every time he
gets out when he’s a passenger whether it’s the third or fourth time in one
excursion or a couple of weeks between trips. I’m thankful he’s aware of what
he needs to do to get out and is still able to go out and is perfectly willing
to ride with me. (No snide comments about my driving.)
Dad is limited in where he can drive and has to have someone
tell him where to go, sometimes even within our neighborhood. I’m thankful he
is still able to drive, and we were able to renew his license online. We’re
still going to have to take his keys away at some point, but not yet.
Dad sees granddaughter Meghan only every two or three
months. I’m thankful he knows exactly who she is when he sees her and when we
talk about her. We never have to say, “Terry’s daughter.”
Dad sometimes asks me how many dogs I have—if I still have
three. I have to tell him again how I had to put Chloe down last April after
she collapsed. It hurts to remember that. I’m thankful he remembers I have dogs
and how many I had at one point. I’m thankful that my stories about the Wonder
Twins, especially Rosie and her squeaky tribble baby, and Chase trying to get
squeaky tribble baby, make him laugh.
Dad’s not going to ever get better. There’s plateaus within
the deterioration, but he’s always going to get worse. I know exactly where the
dementia is going, and I abhor it. I hate the shadow he already is of his
former self and that at some point he will be only a shell unless God
intervenes and takes him home soon. I’m thankful that for now I’m able to
connect with him so much of the time, often pull him out of a bad mood or
soothe a difficulty, help him remember, have a burping contest, make him laugh
and flash that great smile of his. I’m thankful for living a few doors down
from them and working from home so I can be there literally in a minute at a
full run if there’s an emergency. I’m thankful that my sister lives nearby and
we work together so well. I’m thankful for Mom’s sweet spirit and patience with
him even when she gets so frustrated with and sometimes angry at Dad, the
situation, the disease. I’m thankful that although our family is spread around
the country, if we need them, they will be here as fast as they can drive or as
soon as they can get a flight. No questions asked except, “What can I do?” I'm thankful for a friend who walked almost the same path we are (also caused by medications) who is there for me when I need to talk or cry and truly understands and empathizes. I’m
thankful that people are working to slow the progression and perhaps prevent
dementias so others don’t have to go through this. I’m thankful for those who
have gone before in it to help us through and that we will be able to do that
for others until a cure is found. I’m thankful to know that we are not alone in
this—others have experienced the same situations, friends help out with daily
needs and emergencies, family is always there for us, and God is always in
control and always good.
In everything give thanks; for this is God’s will for you in
Christ Jesus. I Thessalonians 5:18
Thanks Terry. We had a great time with you on Skip's birthday weekend. Thanks for all you and Alice do to help, support and encourage your Mom and Dad. Your blogs are a blessing to all of us. I hope the Railroad book I sent Skip is something he can relate to. It's kind of dense, but not a narrative he has to follow, just lots of segmented detail. There is another Colorado train book I can send if you think he would relate to it. It has pictures whereas the one I sent does not. I can also send pictures of places we did live and other common experiences if you think those would help.
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